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Sunday
Dec092012

With a Little Help

Family, Friends & Fans of Roxy unite to help her get back on her feet after surviving Meningitis & a serious spinal cord injury.

http://www.giveforward.com/withalittlehelp

A message from Roxy Vandiver,

My reality....I suffer from an Unidentifiable Viral Syndrome that causes my immune system to collapse for reasons unknown. A Research Team from the Centers for Disease Control have been able to determine very little about the illness. I have been asked to be the subject of University Research and to be written about in Medical Journals.

The Doctors call me "A Zebra". A Zebra is a person with an illness that is unheard of and perplexing to medical professionals. What they do know is this: The Virus is NOT contagious in any way, shape or form, and because I suffered from Spinal Meningitis as an infant, I am predisposed to it and have developed it 5 more times in my adult life.

In July 2012, my immune system collapsed again and I received my 5th and 6th spinal taps within days of each other. Something went terribly wrong during the 5th tap. I could feel every inch of the large needle ripping through my skin, tissue and muscle. I felt it "pop" when it pierced my spinal cord, and when the doctor couldn't get the fluid to drain, he began wrenching the needle around inside of me. I was screaming at the top of my lungs, begging him to stop, hot tears streaming down my face.

I was in Intensive Care Quarantine for 8 days. My visitors were required to scrub down and wear masks, not to protect them - but to protect ME from them. Since my release in July, I have been seeing a Specialist and undergoing Physical Therapy. I had to learn to walk again. I was out of work for 8 weeks. I was doing well until November 2nd when severe pain caused me to lose the use of my left leg. For days, I was in excruciating pain. I lost all feeling in my face and lips. My ability to taste disappeared, and my nervous system was sending terrible electric "shocks" throughout the left side of my body.

On Nov 7th I underwent a surgical procedure on my spine to help alleviate the pain. I have been recovering since, slowly regaining use of my left leg. I am unable to work right now, and may lose my job entirely. I'm swallowing my pride and admitting that I need HELP. I'm drowning in medical expenses and bills. I do not know when my body will allow me to work again. Necessity trumps foolish pride.

I have left the house about 4 times since my procedure.  I am now required to wear a specially designed back brace and use a walker whenever I go outside.  I have officially been decalred Handi-capped and now have a parking permit.  With the help of very strong medications, and a special back support designed to look like lingerie, I am able to stand and walk normally for short periods and was lucky enough to be able to attend the premiere of 'The Haunted Trailer'. 

I am asking you, my colleagues and friends for charitable donations to help me survive during this difficult time. I understand times are tight for everyone and I will not be hurt or offended if you are unable to donate.

Some very dear friends, Troy Parker, Amy LaFavers, and Sabrina Sin are also in the process of helping to organize a Fundraiser Event that will hopefully include an auction, fashion show, and live performances. We hope to hold this event some time after the New Year.

I want to GIVE BACK and not just take. Proceeds will go towards my doctor & specialist bills, physical therapy, medications and also to keep a roof over my head and food on my table until I am able to work again.

I have also chosen a charity that I would like to make a contribution to with a portion of the proceeds from the Event. The Christopher Reeve Foundation for Spinal Cord Research. No amount is too small and every cent is appreciated. My love and gratitude go to the kind souls who have already donated via PayPal. xoxo, Roxy

 

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